RareDisease community
Overcoming challenges to patient engagement in the #RareDisease community Patient engagement can be difficult if the right partners are hard to identify, or if they don’t have the capacity to collaborate. This is even more emphasised when talking about rare or ultra-rare diseases, where the prevalence of a condition is low and patients might be […]
Patient Engagement
…”Well yes, we know that patient engagement is essential, but how do you go about it?” This is something we’ve heard quite a lot in the past and it’s something that we really have to consider when embarking on a patient engagement journey, no matter what stage in the product life cycle is in question […]
Rare Disease Day 2023
MediPaCe supports Rare Disease Day Ahead of Rare Disease Day 2023, MediPaCe is showing support by sharing resources and information about rare diseases and patient engagement in this area to help raise awareness. Did you know that there are over 300 million people living with a rare condition? And that there are about 6000-8000 identified […]
world cancer day
World Cancer Day This year, we at MediPaCe, decided to support World Cancer Day on the 4th Feb 2023 by sharing stories, promoting good behaviours and talking about the barriers to health care that exist for some people #CloseTheCareGap World Cancer Day 2023 explores the equity gap and the 8 barriers that stand in the […]
Mastodon
Creating a positive and supportive social media community for anyone interested in Patient Engagement Patient engagement is a collaborative activity and it’s only through working together, listening, and learning from each other, that we will advance the field. For this to happen there needs to be a space where anyone from any background can join […]
birthday-5years
About MediPaCe MediPaCe is a Patient Engagement and Patient Research Company that was founded on the core belief that to deliver the outcomes that matter most to patients you must work in equal partnership with patients themselves. This human-centric, inclusive approach is the driving force behind our commitment to deliver measurable, long-term and sustainable impact. […]
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MediPaCe is growing It is our pleasure to announce that Natalie Swiderska and Chi Pakarinen have both joined our MediPaCe family. Natalie is our new Patient Engagement Lead and brings with her many years of experience working in the patient organisation sector. She has extensive expertise in facilitation and co-creation and is dedicated to ensuring […]
New publication: Measuring Impact MediPaCe has worked with Ipsen and 13 patient organisation representatives to co-create practical measures of patient engagement impact that are highly relevant for both the patient community and company. Integrating patient insights into the medicine development process is important for everyone and required by authorities reviewing new treatments. To consistently improve […]
