Claire Nolan

Patient Advocacy Lead

After leaving academia, Claire joined the health charity sector and has worked in different roles over the last decade. In 2013 Claire joined Parkinson’s UK, building a patient/carer network of almost 5000 people engaging with Parkinson’s research across the UK. Claire went on to develop a leading Patient and Public Involvement (PPI) in research programme supporting over 150 research teams to work with 130 people affected by Parkinson’s to shape vital Parkinson’s research. More recently Claire’s work has included supporting pharmaceutical companies to work closely with people affected by health conditions to understand burden and unmet need, as well as develop sensitive and acceptable clinical trial protocols, and more relevant outcome measures.


Claire continues to work with a number of UK charities as well as the Charities Research Involvement Group (CRIG) in the UK. She was lead author of the recent CRIG guidance Supporting patient and public involvement in industry-led research: guidance for charities and works to support charities and pharmaceutical companies to work together to ensure people affected by health conditions are at the centre of medicines development. 


Claire is married with two young children. She was once (in a past life it seems) an energetic aerobics instructor and a keen runner and cyclist but now grabs the chance to exercise wherever she can. She also dabbles in reiki, should not be let anywhere near anyone’s plants and is attempting to save the planet by becoming a vegetarian.


Contact: LinkedIn

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